The alternative to breaking noses: a blog post about STUPID things people say (or publish!) about inflammatory bowel disease.
Counter to typical practice, I'm not citing these,because I don't think it's good manners to point fingers.
1)You might be gluten intolerant.
Do you want to SEE the photos of the ulcers in my colon? It's pretty disgusting. I get that food allergies are a big deal for many people, including some with IBD. I'm not one of them. Oh, and food sensitivities generally don't need surgery, or steroids, or immunosuppressants or....
2)Often, if Crohn's patients are not hungry, it's better for them not to eat, because it gives the intestine time to heal.
(In all fairness, I understand this one a bit better). I weigh 115 lbs on a good day. I'm always hovering right around the low cutoff point for normal BMI. If I don't get some sort of nourishment,particularly protein, my body is not going to be able to maintain normal functions, let alone repair itself.
3)A colon is not a necessary organ, just a highly convenient one.
I hope that's self-explanatory? I consider this Exhibit A of why people who do not have chronic diseases should be extremely cautious of writing books for people who do. NOBODY wants to lose body parts. ever. And you're not going to help anyone come to terms with losing a body part by telling her that it's not important. My colon doesn't work perfectly, but it's my colon, and I'd like to keep it. It's special to me in a way that a J-pouch or ostomy bag never could be. I'm hoping I'll never have to have that conversation, but no doctor will convince me to have surgery because my colon isn't important.
4)You need to look for good sources of calcium, like canned salmon with bones. If the bones bother you, you can smash them with a spoon, or put it through a blender. But you'll probably start just eating the salmon, bones and all, once you realize how much work crushing the bones is.
Why am I supposed to get excited about eating bones? And if whole grains, nuts, and seeds can irritate the ulcers in my colon, I have a feeling bones will do the same. It seems rather presumptuous to make judgments about my food preparation priorities, especially when I'M the one with the diseased colon.
Sigh. I have a feeling that I should title this "The alternative to breaking noses" part 1, since it's likely to become a regular feature.